Ranchi, October 17, 2017: “We are all gathered here today as the state of Jharkhand takes one big step towards our common goal of eliminating TB by 2025. Now, TB drugs will be given daily as against the earlier alternate day regimen. This is a great initiative by the Revised National Tuberculosis Control Programme and the Jharkhand state government, to make this treatment easier for all patients. The treatment is now simplified and we hope that this will be very successful,” said Shri Ramchandra Chandravanshi, Hon’ble Minister of Health and Family Welfare, Government of Jharkhand, at the launch of Daily Regimen for TB in Ranchi, Jharkhand on Tuesday, October 17.
Jharkhand will now begin providing daily treatment to those affected by TB, and the Health Minister administered drugs to three patients to kick off this new, improved regimen. The launch event was organised by the State TB Cell, Jharkhand, in partnership with REACH and with support from United States Agency for International Development (USAID).
Speaking at the launch, Shri Sudhir Tripathy, Additional Chief Secretary, Health, Government of Jharkhand, said, “This is an important day for us because we are transitioning from one regimen to a better, more efficient one. TB is the biggest public health crisis that affects people in their most productive years. It would have been easier to digest the deaths caused due to TB if there was no treatment available, but it is curable and treatment is free. Even then, to see these numbers, shows our weakness. That is why this is a good opportunity, to launch such innovative ways to address this problem.”
The event also saw the official release of communications materials featuring Arjuna awardee Olympic archer Deepika Kumari. TB Ambassador Deepika Kumari lent her voice to the TB campaign through a series of video and audio messages as well as posters developed by REACH’s TB Call to Action project, with support from USAID. “Deepika Kumari’s message will now be showcased in every home and every village. I congratulate REACH for this very special work,” said Shri Chandravanshi while launching the campaign. “We are grateful to Deepika for her support and commitment as a TB Ambassador, and we are confident that through these messages, we can help improve awareness about TB, reduce stigma and connect people to TB services”, said Smrity Kumar, Project Director, REACH.
Jharkhand is the first state in the country to have a State Task Force on TB, which was set up earlier this year under the chairmanship of the Additional Chief Secretary. Congratulating Shri Tripathy and REACH for this unique achievement, the Hon’ble Health Minister said, “This is an unique initiative that brings together various departments to integrate TB into the mainstream. I request all of you present here to join hands for a TB-free Jharkhand.”
The event also saw representatives from the Jharkhand TB Cell as well as REACH and other development partners. Dr Rajkumar Beck, State TB Officer, addressed the gathering by sharing the state TB scenario while Dr Anindya Mitra, Training Officer, STDC, shared details about the new regimen.
REACH invites applications for its Capacity-Building Workshops for TB Survivors to be held in three Indian states -Bihar, Jharkhand and Odisha.
TB Survivors from these states are requested to send in their applications on or before October 3, 2017
For more information, please refer to the application forms attached below.
Download the application form for Bihar (Hindi) here.
Download the application form for Jharkhand (Hindi) here.
Download the application form for Odisha (Oriya) here.
Guwahati, August 24, 2017: “TB requires urgent attention and it is necessary to involve local governments, corporates and those personally affected by TB, for a meaningful contribution to this national cause,” said Hon’ble Governor of Assam Shri Banwarilal Purohit, while speaking at the launch of the TB Call to Action (TBC2A) Project in Assam.
Shri Purohit was the Chief Guest at the launch event of the TBC2A project, implemented by the Resource Group for Education and Advocacy for Community Health (REACH) with support from the United States Agency for International Development (USAID). The project seeks to amplify and support India’s response to TB by involving previously unengaged stakeholders and broadening the conversation around the disease.
Narrating a personal experience, the Hon’ble Governor said, “Back in the 1950s, when I was 10, my uncle was diagnosed with TB and the environment in the house was morose, as if there was no hope. Jewellery was pawned, we saved money and he was sent off to a sanatorium for six months. More than 30 people from our village went to see him off at the border because most believed he wouldn’t ever come back. That was the scenario back then. But today, it is different. TB is entirely curable, early identification is all it takes. Since the commitment of the Government of India is now on record, it should become that much easier for us to realize the dream of a TB-free Assam by 2025.”
Through the TBC2A project, REACH will prioritize two interconnected aspects of India’s response – strengthening and supporting the community response to TB and advocating for increased financial, intellectual and other resources for TB. “If we don’t unite now, the TB scenario will become worse than it is. With initiatives like ELM in tea gardens, we will get an opportunity to reach the unreached,” said Dr Achyut Baishya, Executive Director, National Health Mission, Assam.
The launch event was preceded by a consultative meeting on Employer Led Model (ELM) for TB Care and Prevention, which brought together senior representatives from tea garden associations to discuss the need for industries and corporates to work towards the welfare of their employees. Explaining the proposed ELM initiative, Dr SN Misra, Consultant, REACH, said, “ELM is globally accepted as a best practice because employers have the power to reach those that even governments cannot sometimes reach.”
Participating in the launch, Dr Amar Shah, Project Management Specialist, Health Office, USAID/India, said, “We must all work together to successfully turn the tide on TB. USAID is working hand-in-hand with the Assam government, healthcare professionals, corporate organizations, patients and survivors, to foster an environment that supports TB patients and moves us toward a TB-free India.”
Presenting an overview of the TB Call to Action project, Ms Smrity Kumar, Project Director, outlined priorities for Assam, including engaging elected representatives, involving private pharmacies, strengthening the community response and inter-sectoral coordination for a comprehensive response to TB.
New Delhi, 2017: During the Regional Capacity-Building Workshop for TB Survivors, participants from India held several discussions on the urgent need for a network or coalition of those affected by TB. This has since resulted in the formation of Touched by TB-The Coalition of TB People in India.
At the first ‘official’ meeting held on the last day of the workshop, the group identified national coordinators as well as regional focal points. In keeping with their self-identified mandate to support the TB programme in India, they agreed on several key objectives including creating and sustaining a coordinated and capacitated national coalition; ensuring treatment literacy and awareness for people living with TB; advocating for acceptable, accessible, compassionate, comprehensive, rights-based services; and networking with and support the Ministry of Health and the RNTCP and its partners to achieve the goal of ending TB in India by 2025.
July 6, 2017, New Delhi: “TB is not just a biomedical problem, and we must develop the capacity of nurses across socio-economic and socio-medical factors for effective tuberculosis control,” said Dr Khaparde, Deputy Director General, TB, Central TB Division, Ministry of Health and Family Welfare, Government of India. He was speaking at a national consultation on the involvement of nurses in India’s response to TB, organized by REACH in New Delhi, in keeping with its mandate to involve previously unengaged stakeholders under the Tuberculosis Call to Action (TBC2A) project. The consultative meeting brought together experts from the nursing and medical professions along with development partners, to come up with a sustainable way to incorporate TB into the current nursing curriculum and training modules.
Nurses have the unique advantage of having earned the trust and respect of the public, having access to all levels of the population, working with patients over the course of their lifespan, utilizing a horizontal approach to healthcare, providing a range of services – from immunization to palliative care and everything in between – and finally providing individual and community-level interventions. In addition, nurses provide services at all levels of the service delivery system, from the PHC level to tertiary care hospitals.
“The National TB Programme has for long been working with medical colleges and NGOs, but not so much with nurses. A nurse is with the patient from womb to tomb – the first and often also the last point of contact for the patient as well as the patient’s family. We need to tap into this vast workforce, across stages of detection, diagnosis, treatment and adherence. Nurses, with their medical and paramedical background, can understand the complex TB treatment, that involves four, sometimes six types of drugs, including injectables. Nurses can also play the role of counsellor, for better treatment adherence and management of adverse drug reactions,” Dr Khaparde added.
Also speaking at the consultation, Mr T Dilip Kumar, President, Indian Nursing Council, said, “We need to keep nurses engaged all the way through, and here, periodic updation of their syllabus, curriculum and manuals goes a long way. Nurses, in addition to working for efficient treatment and adherence, also play a crucial role in early detection, if they are familiar with symptoms. In addition, they also come in contact with the close relatives or contacts of the patient, and can hence contribute significantly towards early detection of the TB disease.”
Participants discussed the many ways in which nurses could be involved in responding to TB, including a curative role in disease prevention and health promotion; providing health education at an individual and community level, and interdisciplinary work with other healthcare and public health professionals in order to provide the most comprehensive care possible. Nurses can contribute significantly by ensuring priority screening & diagnosis of presumptive TB cases, providing cross referrals of People living with HIV and patients seeking TB services to rule out HIV Infection, providing education regarding cough hygiene and adherence counseling, among other areas.
The meeting was organized by REACH in association with the Central TB Division, MoHFW and the United States Agency for International Development. Speaking at the meeting, Ms Smrity Kumar, Project Director, TB Call to Action, said, “Nurses are an important part of the health system, and all such stakeholders must come together to achieve the country’s target of eliminating TB by 2025. The objectives of this meeting were to assess the existing role of nurses and the way forward. Nurses need to be engaged in the implementation of the national TB programme from the highest to the lowest levels”.
Dr S N Misra, Consultant, REACH, who has vast experience in training of nurses in HIV, TB and ANM care, spoke about the impact of investing in such training. “India was the first-ever country selected by Global Fund for an exclusive training programme for nurses. While it started out for training on HIV, it was expanded to include TB and ANM training, thanks to the success seen in the HIV component. These trainings cover patient etiquette, bedside etiquette, infection control, communicating with family, confidentiality and other soft skills. Nurses felt empowered by these trainings and this ensured continuous engagement over their professional career,” he said.
The group discussed issues regarding sustainability of a training programme for nurses, as well as the engagement of nurses in private sector hospitals and the need for infection control mechanisms to protect the workforce. The meeting was also attended by representatives from the NITRD (expand), World Health Organization, JHPIEGO, Fortis Hospital, REACH and other key partners in India’s response to TB.
REACH is a non-profit organization dedicated to the fight against TB since 1999. The TB Call to Action project, supported by USAID and implemented by REACH in six states, seeks to amplify and support India’s response to TB by broadening the conversation around the disease and involving previously unengaged stakeholders.
New Delhi, April 12, 2017: Tuberculosis (TB) survivors and advocates from India, Indonesia, Vietnam, Cambodia, Bangladesh and the Philippines met in New Delhi from April 10-13 to take part in a first-of-its-kind capacity building workshop.
Organized by REACH, in partnership with the U.S. Agency for International Development (USAID) and the Geneva-based Stop TB Partnership, the four-day workshop brought together 32 people from six countries who shared personal experiences on TB, documented the societal and systemic barriers they faced, transformed the barriers they faced into concrete advocacy goals and strategies and discussed the power of collective community-driven advocacy to change the status quo in TB.
“The voice of the survivor becomes the voice of India. In TB, there is a dual stigma – one is the disease itself but the other is poverty. This dual stigma can be explained best by the TB survivors. The TB fight is not finished – but survivors will help us get there. TB survivors at different levels can be great ambassadors and pass the message very efficiently so that TB loses, and we all win,” said Dr Sunil D Khaparde, Deputy Director General, TB, Central TB Division, Ministry of Health and Family Welfare, Government of India, who was the chief guest at the valedictory session.
Speaking at the valedictory session, Xerses Sidhwa, Director of Health at USAID/India, said: “USAID is proud to support this workshop, which helps TB survivors to become powerful agents of change in India and other regional countries. It is critical that we actively engage TB champions in designing and implementing programs and advocating for policy change. Their experiences can guide the way forward as we move toward a TB-free India and world.”
Dr. Nalini Krishnan, Director, REACH, added: “At the core of our work is ensuring that those affected by TB are an integral part of all efforts, extending beyond tokenism. This capacity-building workshop is an important step to achieving a long-term role for trained, committed advocates in policy advocacy, overseeing program and program implementation.”
The workshop addressed issues such as the science and burden of TB, and focused on the need for powerful and effective storytelling. “I lost my father to TB. And a few years ago, I was diagnosed with TB as well and I could never speak about it. It’s a huge burden to suffer alone. That is why this workshop just clicked for me. People wanted to listen to our stories, and I have learnt how to tell my story even better,” said Arun Singh Rana, a TB survivor from India, at the closing ceremony. Another TB Champion,Cherry Florida from the Philippines, said, “I would like to honour REACH for bringing us all together to hear everyone’s stories, it’s really encouraging to come together like this on an international level. This workshop really changed my perspective and helped me look at the broader picture.”
Speaking during the workshop, Blessina Kumar, CEO (I), Global Coalition of TB Activists, one of the lead facilitators for the workshop, said, “The energy brought in by the TB Champions who won the fight against MDR, XDR TB and just TB was palpable. The TB response across the world is missing passion and if we want to End TB in our lifetime, we need their lived experiences, their passion and their energy to bend the curve and win the battle.”
Globally and in South-East Asia, the TB crisis demands a comprehensive response from both government and non-government actors, including the private healthcare sector, business leaders, civil society and most of all, those directly affected by TB—patients, survivors and their families. However, responses to TB have remained top-down and TB survivors, patients and their families have had little or no role to play in the fight against the disease.
“If we are serious about ending TB, engaging those who have experienced TB first hand in a meaningful way is critical,” said Dr Lucica Ditiu, Executive Director, Stop TB Partnership. “The Stop TB Partnership is therefore delighted to partner with REACH to support the desire of TB Survivors from the South East Asia region to further build their skills to become even more powerful TB advocates and we look forward to continuing our collaborations with other community and civil society partners in the region such as the newly established Asia-Pacific Activists’ Coalition on TB (ACT Asia Pacific) and the regional arm of the Global Coalition of TB Activists (GCTA),” she added.
Patna, March 24, 2017: A high-profile gathering of elected representatives, public health officials, TB and HIV affected communities and representatives of civil society organizations pledged their commitment to the fight against TB in Bihar at a World TB Day programme held in Patna. This was organized by the State TB Cell, Government of Bihar, in partnership with REACH and the National Coalition of People living with HIV (NCPI+).
The oath-taking was led by Shri Krishna Nandan Prasad Verma, Honourable Minister, Public Health Engineering and Law, Govt. of Bihar. Shri Shyam Rajak, MLA Phullwarisharrif, Shri Neeraj Kumar, MLA Graduate Constituency, Dr Ravindra Yadav, MLA Jhajha Jamui; Shri Nitin Naveen, MLA Bankipur, Patna; and Shri Vinod Narayan Jha, Member Legislative Council also participated.
Speaking on the occasion, Shri Verma extended his support in the fight against TB, saying, “Earlier TB was considered a deadly disease and we thought no one would survive. Now we know there is treatment available. We need to work more especially in the rural areas of the state. Let us try to reach the unreached population, the homeless and the poor”.
Shri Neeraj Kumar, MLA, called on all departments to work together, noting the need for nutritional and social support for those affected by TB. “We need to link social welfare schemes to the TB programme”, he said. Shri Shyam Rajak MLA Phullwarisharrif, declared his commitment to work towards a TB-free Bihar. “Just as we eliminated small pox and other deadly diseases, we can defeat TB as well if all of us work together”. Shri Vinod Narayan Jha MLA spoke of the stigma associated with the disease.
State TB Dr (Maj) KN Sahai briefly described the TB programme in Bihar. Shri UN Vidyarthi, Chairman – Bihar TB Association; Dr SK Akela, Addl. Project Director-BSACS; Dr VK Singh, Director TBDC; and Dr Kailash, Regional Director RHO also participated.
With over 1,300 deaths per day, TB continues to be a grave public health crisis in India. The New National Health Policy re-emphasizes India’s commitment to eliminating TB by 2025, reducing deaths, suffering and catastrophic costs related to the disease. “Through the Call to Action project we are implementing in Bihar, REACH will amplify and support India’s response to TB by involving previously unengaged stakeholders and broadening the conversation around the disease,” said Ms Smrity Kumar, Project Director, TB Call to Action.
REACH and NCPI+ partnered to observe the World TB week, with events held from 20-24 March including a rally, street plays, drawing and quiz competitions and a poster exhibition.
Bhubaneswar, March 24, 2017: On World TB Day 2017, three eminent Oriya personalities – musician Padma Shri Prafulla Kara, sand artist Padma Shri Sudarsan Pattnaik and actor Shri Kuna Tripathy were announced as TB Ambassadors for the state.
All three Ambassadors expressed their commitment to improving awareness and public understanding of TB in Odisha. Speaking the previous day on Puri beach, where he created a sandart installation, Padma Shri Sudarsan Pattnaik said, “I want to create awareness about TB together with the state government and REACH. India has a big TB burden but there is a cure, so let us all become more aware that we can become TB-free.”.
“Generally celebrities are expected to endorse cosmetics, or fabrics, jewellery items or any other luxurious brands, so if we celebrities stand with causes like TB, then the society is surprised. So, why I am I here? The society gave me name, fame, identity, respect, but what I am I giving it back to the community. I was shocked to hear that every three minutes, someone dies of TB in India. I am here to join the fight against TB”, said popular Odia actor and stand-up comedian Kuna Tripathy.
Also speaking on the occasion, Padmashri Prafulla Kar, award-winning Odiya musician, commented, “Our commitment as ambassadors or TB champions in this campaign is to increase awareness amongst everyone, so that we can jointly work towards eliminating TB in the state. Some of us are aware about TB but we have joined this cause to spread awareness amongst all”.
“We have believed for a long time that the fight against TB needs the active involvement of leading artistes and intellectuals. We are delighted and grateful that Shri Prafulla Kara, Shri Sudarsan Pattnaik and Shri Kuna Tripathy have declared their commitment and look forward to working with them to dispel the many myths and misconceptions that persist around TB in the community”, said Dr Nalini Krishnan, Director, REACH.
The Ambassadors were felicitated at the World TB Day event organized by the State TB Cell and Government of Odisha, which brought together government public health officials, civil society organizations, TB Survivors and affected communities.
“Together with our TB Ambassadors from the state, I am certain that we will control TB by 2020 and eliminate it by 2025. We are very thankfully to development partners like REACH so we can unite to end TB and achieve zero TB deaths”, said Dr Kailash Chandra Dash, Director of Health Services, Government of Odisha.
With over 1,300 deaths per day, TB continues to be a grave public health crisis in India. The New National Health Policy re-emphasizes India’s commitment to eliminating TB by 2025, reducing deaths, suffering and catastrophic costs related to the disease.
The TB Call to Action Project is being implemented with support from USAID in Jharkhand, Odisha, Assam, Bihar and Rajasthan. Through this project, REACH seeks to amplify and support India’s response to TB by involving previously unengaged stakeholders and broadening the conversation around the disease.
New Delhi, March 9, 2017: To mark International Women’s Day and the upcoming World TB Day, REACH (Resource Group for Education and Advocacy for Community Health) and the U.S. Agency for International Development (USAID) organized a TB Centrestage discussion today in New Delhi on the urgency to integrate gender in India’s tuberculosis (TB) programs. The meeting convened experts from TB and gender sectors, government representatives, civil society organizations, and TB survivors who argued for more gender-sensitive programming in India.
Addressing the gathering, Dr. Soumya Swaminathan, Director-General, ICMR and Secretary, Department of Health Research, Government of India, said, “Despite there being plenty of anecdotal evidence, we have a lack of hard data, leading to a lot of myths and misconceptions. In order to address issues such as stigma, we need to first make an effort to carry out better research. I hope that we are able to identify and highlight important research questions through gatherings like these.”
According to a recent World Health Organization report, TB affects an estimated three million women every year and remains a leading cause of death among adult women globally. Despite the severity of this issue, attention to the gender–specific aspects of the disease is still lacking. Issues such as stigma and poverty are heightened for women TB patients, who are often abandoned by their families or blamed for endangering the health of the family.
“It is essential to look at TB as social suffering. It is not just a clinical problem. The disease impacts your roles as a worker, mother and wife, which go through periods of great disruption. So even if biologically, women are less susceptible to TB, socially, their burden is much greater than that of men,” said Professor Rama Baru, Centre of Social Medicine and Community Health, Jawaharlal Nehru University.
Highlighting these socio-economic aspects and inequities of gender and TB, Xerses Sidhwa, Director, Health Office, USAID/India, said, “As we work to address these disparities, we must employ a multi-faceted approach for TB that puts women and girls at the center and engages their families, communities, and governments in innovative programs that strengthen the enabling environment and transforms systems.”
Dr Sundari Mase from WHO described the epidemiology of TB in men and women, globally and in India, stressing upon the impact of TB on maternal health. Ms Blessina Kumar from the Global Coalition of TB Activists spoke on the need for a gender-sensitive assessment of the TB scenario in India.
Moderating the discussion, Dr Anuradha Rajivan, Former ADB Advisor, Strategy and Policy Department, said, “Social conditioning prevents access to coming out and speaking about TB. So, a gender-sensitive approach, required in all walks of life, becomes acutely critical in the context of TB.”
“This meeting marks the first in a series of steps for the coming year to draw attention to gender integration as we continue to advocate for effective and evidence-based policies that will help reach the collective goal of ending TB in India by 2025,” said Dr. Nalini Krishnan, Director, REACH.
The event also saw the launch of Nine Lives, a book by Chapal Mehra and Zarah Udwadia. This publication chronicles the journey of nine brave women who survived TB despite significant barriers due to stigma, lack of awareness and economic status. Two of the survivors featured in the book, Nandita Venkatesan and Deepti Chavan, read excerpts from their stories. “When we began documenting these stories, we wanted to record the lived journeys of women surviving TB in a patriarchal society where they often have limited access to health services and little agency to negotiate their own well-being. They live with stigma, fear and discrimination when infected with TB. Even when cured, they are told never to talk of TB again, as if it were somehow their failing, their fault,” said Zarah Udwadia and Chapal Mehra, authors of the book.
The Tuberculosis Call to Action project, implemented by REACH and supported by USAID, advocates for gender-sensitive policies at the national and state levels in Assam, Bihar, Jharkhand, Odisha, Rajasthan, and Uttar Pradesh.